5K to end Brain Tumours

16807227_1075796519233009_8611937441616097235_nOn March 18th 2015, I was diagnosed with a brain tumour and it was life changing. I believe that no one should hear the words “you have a brain tumour”, but it will continue to happen. Which is why it is so important for me to support organizations like the Brain Tumour Foundation of Canada that help those of us unfortunate enough to have heard those words.

As a brain tumour survivor I feel that it’s my duty to raise money for those that never got the chance. Brain tumours and brain cancer are nasty beasts so please join me in supporting this cause near and dear to my brain. I will be running the 5K on May 28th and I will gladly accept your donations on behalf of the Brain Tumour Foundation of Canada.

This is why I’m fundraising for Brain Tumour Foundation of Canada. Patients and families need information, support and education. We also need more research. There are too few treatments for this disease and survival needs to be improved.

Every dollar raised by the Brain Tumour Walk goes towards these goals.

Thank you for giving and, more importantly, for helping the 27 Canadians diagnosed daily with a brain tumour. You’re changing lives.

For those of you that have already sponsored me, thank you!

On May 28th my family will be running to raise money for the Brain Tumour Foundation to donate please follow this link. THANK YOU!!

Ebb & Flow

Two and a half months after brain surgery my husband and I went away over night to celebrate our anniversary without the kids! It was the same weekend as the Brain Cancer Got Me Thinking art show, in October 2015. I participated in the art show and was interested in seeing the show, but I also wanted to have a spa weekend with my husband.

We opted for the spa weekend, and I am glad that we did. We spent the better part of the day in a mineral pool and it was the first time in a long time that I felt relaxed. It also inspired the piece which I submitted this year for the Brain Cancer Got Me Thinking art show.

Ebb & Flow is a quilling (paper) piece inspired by our weekend away post surgery. Learning that you have a brain tumour is a dark experience. “Ebb & Flow” depicts my recovery from brain surgery. The large dark circles represent the hours spent in surgery and the balance of the circles depicts the good and bad days after surgery. I was in a state of constant fluctuation much like the ebb and flow of the tide. The colours used are intended to represent water.

This piece is part of the Brain Cancer Got Me Thinking show at the Visual Space Gallery in Vancouver. The show runs from May 3-9th. If you check it out let me know what you think.

Before and After Brain Makeover

As a designer I LOVE a good before and after makeover. Before I went in for surgery to remove a brain tumour named Timmy, I joked about my brain being closed for renovations. On March 18, 2015 two years ago today I was diagnosed with a brain tumour standing in the hallway of emergency in my jammies. It was the worst day of my life (hopefully for ever).

Today two years later I am fully recovered from my renovations and I must say that my neurosurgeon did an amazing job. He really knows how to use that skull saw, and drill! Because I wanted all of the gory details, I ordered my surgery report and read it with a much needed bottle of wine. Aside from the metal plate holding my brain in, and the three inch scar running down the back of my head I am as good as new.

Timmy took up residence in my cerebellum the part of the brain which coordinates movement. On my one year surgery anniversary I tested my cerebellum with a paddle board yoga class, and although I took a dip in the Welland canal my balance has never been better. I still can’t dance but I’m pretty sure my lack of dance ability is a genetic defect and not brain tumour related.

What I have learned from having a brain tumour, and now being a brain tumour survivor has changed me forever. For the better I think 😉 Plus I have one hell of a scar.

No makeover is complete without pictures, so here is my brain with a brain tumour and 3 months after surgery.

6 Years for Better or Worse

6-years-2_making-a-life

Historically October has been a big month for my husband and I. We met 10 years ago in October, 9 years ago in October I moved across the country to live with him, and 6 years ago we got married not once but twice in October. October is our month. We got married legally in Victoria on 10/10/10, which is a very convenient date to remember. We then got married in Mexico on October 28 surrounded by friends and family.

I have become a celebrator, I celebrate everything post brain tumour. But a wedding anniversary that is a super big deal. Being married is hard, which is why I think that there is so much divorce. It’s hard to stick through the “for better, for worse”times and still love each other. We have had our challenges but we are still making the choice to show up and that deserves a celebration!

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A Light in the Storm

a-light-in-the-storm_making-a-life

Packing up this piece today, to send it to the “Inner Workings” art show at The Gerry & Nancy Pencer Brain Tumor Centre in the Princess Margaret in Toronto. Last year I participated in the “Brain Cancer Got Me Thinking” art show in Vancouver with this quilling piece which kept me busy during recovery from brain surgery.

On March 18, 2015, I was diagnosed with a brain tumour while standing in the hallway of the emergency department. It was an emotional journey while I battled with what it meant to have a brain tumour and the decisions that I had to make as a result. On August 7th, 2015, I had surgery to remove the tumour.

Learning that you have a brain tumour is a dark experience. Having a brain tumour is not something that we patients do alone, we need life guards and beacons of light in the storm. One of the people that brought me light was my neurosurgeon. He was patient, kind and gave me hope. I also see him as a life guard who protected me through surgery. I dedicate this photo to him, and as I no longer need his services there is no longer a life guard on duty.

“A Light in the Storm” is my entry to the “Inner Workings” show.

My brain-iversary

 

My Brain 1On August 7th 2015 I went into the hospital to have a meningioma tumour removed from my brain. The experience was no picnic, but I survived and a year later I am thriving. I blogged all about my brainy experiences pre and post surgery, and if you are interested in the gory details they are all there in the BRAIN TUMOUR tab at the top of every page.

I celebrated the one-year anniversary of having my skull cut open and Timmy the tumour extracted, on August 7th, 2016. It was a monumental occasion for me and one that I am thrilled to be able to celebrate. Timmy the tumour lived in the cerebellum region of my brain which is the part of the brain that coordinates muscular activity. Pre-surgery I had some issues with dizziness, headaches and was advised to limit my activities to those that would not increase my blood pressure. I also had to keep my wine intake to a minimum as my balance wasn’t exactly ideal.

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Third Times A Charm

Camping 19 Making A Life

After the first disastrous camping trip three years ago, I didn’t have it in me to try for a second time. When my husband decided to give it another go I wimped out and took our not quite 2-year-old home to sleep at night. Last year I used the “I have a brain tumour” excuse (which got me out of just about everything that I didn’t want to do) and we didn’t go. This year I took one for the family, pulled up my big girl panties and went camping.

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THANK YOU

MM4Thank you to all of the people that donated to our walk for the Brain Tumour Foundation. My husband, son who requested donations in lieu of gifts for his 7th birthday and I raised a combined total of $2,395. We walked/ran the 5K route around the University of Victoria yesterday. I ran it with my 7-year-old trainer, while my husband walked with our 3 year old. It was an emotional day as I remembered where I was last year for the walk. Last year I had been recently diagnosed and was in the process of learning about treatment. I could not run because it caused a great amount of pain in my head. However, this year I proudly wore the blue survivor shirt and ran most of the 5K with my seven year old.

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27 Canadians a day are diagnosed with a brain tumour, I WAS one of them.

BT posterOn March 18th of last year I was diagnosed with a brain tumour and it was life changing. I believe that no one should hear the words “you have a brain tumour”, but it will probably continue to happen. Which is why it is so important for me to support organizations like the Brain Tumour Foundation of Canada that help those of us unfortunate enough to have heard those words.

This is why I’m fundraising for Brain Tumour Foundation of Canada. Patients and families need information, support and education. We also need more research. There are too few treatments for this disease and survival needs to be improved. Continue reading

I just want snow

S14I know that I have readers all over the world, and for those of you still digging yourselves out of the snow you might be surprised that my son asked for snow for his birthday. It has been 2 years since he has been able to play in the snow. I have fond memories of playing in the snow when I was a kid, and so I do understand his request. When asked if he wanted to go skiing or have a birthday party he opted to go skiing, which really impressed upon me how important this was to him.

So we rented a ski condo from a friend, packed up our (newly purchased/borrowed/knitted) snow gear and set out for the mountain. In an effort to make the most of our weekend I booked lessons for the kids and my husband who had never skied or snowboarded before.

I learned to ski when I was a kid and skied through highschool as part of the ski club but it has been 16 years at best guess since I have skied. To be truthful I was a little nervous that I wouldn’t remember how, or that I wouldn’t be much good. That whole brain tumour, metal plate in my head thing has made be overly cautious. I was also nervous about the movement and potentially getting dizzy. I am 100% OK when I am walking but I have had some movement issues post surgery. But I am so happy to report that I skied (wearing a helmet) for two days. My body was sore but my heart was full. I am happy to have been able to do something that I really enjoy.

S10The birthday boy unfortunately had a different experience. Five minutes into his ski lesson my husband took the call to pick my son up because he had been sick. They both missed their lessons, and the birthday boy spent the next two days in bed with the flu. I felt awful for him. He did get on skies briefly, threw some snowballs and went for a sled ride but he missed out.

My youngest however has proven to be a true snow bunny. My husband was able to reschedule his snowboarding lesson and would do it again, and I conquered a small fear, so all in all the trip was a success. We will be back at it next year, hopefully earlier in the season!

 

In true Making a Life fashion I knit the kids matching multi-colour hats and for myself a white/orange winter hats for the occasion.