How are you? This little question has turned into more of a greeting than an actual question. When you answer it do you tell the truth? Or do you say fine, thanks. How are you?
I feel like I am lying if you ask how I am and I say fine, because in no way am I fine. So I have started saying I am great except for the brain tumor. I have gotten some interesting reactions to say the least. I do however have great hope that I will one day be able to say fine again and really mean it.
I have been telling people that I have a brain tumor, some out of necessity, some because I want to, and others because I don’t want to pretend that everything is OK. I have been openly sharing my story. It’s hard because it’s emotionally exhausting but it’s worth it. I don’t even know how many people have told me of friends, relatives, or acquaintances who have survived a brain tumor. I have lost count. Your stories inspire me and fill me with hope, thank you, thank you, thank you.
Tomorrow we will be walking in the Brain Tumour Spring Sprint. I have raised money and participated in many walks for all kinds of causes but never one that affected me personally. I wanted to thank everyone for your donations, it’s humbling to know that I have so many people’s support. I have raised just over $1,000.00. Yahoo. If you would like to donate to this cause very close to my heart (brain) please do. Here is the link. http://www.springsprint.ca/site/TR/SpringSprint/General?px=1028237&pg=personal&fr_id=1217#.VWEjiU_BwXA
I decided to turn the image of a brain formed by hands into a shirt because I thought that it would make a perfect shirt for the kids for the walk. Every occasion around our house get some sort of t-shirt, this is no exception. I anticipate that they will be covered in food and or dirt and I may need to make another set before the walk tomorrow.
My parents participated in a walk to raise money and awareness for brain tumors and survivors last year a few months after his surgery. Dad said it was a great experience to meet other survivors. I hope the walk went well for you and congratulations on raising such a great amount. I have hope that you will be able to say you are great! soon.
Thanks Brandee. It was a great walk. I am super proud of my 6 year old for walking the 5K without any complaints.
Hi! Just found your blog… thank you for your writing!
Interesting, I just posted on my blog about the “How are you?” also. What a frustrating question that can be!!
Best wishes to you!
OMG, I was just reading that post you wrote called “how are you”. I think we might be on a similar journey right now. All the best to you too.
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That’s a real trip! Maybe our tumors are talking behind our backs?
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Lol, I call mine Timmy. I see yours is Bob. Maybe they are besties. I am following your blog so please keep telling your story. I don’t see the neurosurgeon again until June 18. The waiting sucks.
Thanks for following me too! Yeah waiting blows… My next MRI is in 5 more weeks to see if Bob is growing. Ugh. Hang in there! I look forward to reading more from you.